Sorry it's been a week with no news, but nobody has gotten back to us! I've put in my calls and plan to bug more people tomorrow. But until somebody tells me something, I have nothing to report.
Soren's been having a few tonic and tonic-clonic seizures every couple days. It's tending to just be one or two. Not anything "major" where we have to reboot him with the Diastat. Not that it makes those seizures any less stressful. I was actually at a writing class the past four days while Aaron took care of the kids. He's the one who had to deal with the stress of it all.
In other, non-test result news, we're planning for our December trip to the DR. For now, this will be our last. This is mainly because we will run out of the funds we've raised! But we got three treatments out of that money, so thanks to you all!
The other reason this will be the last for now is that we want to let things percolate in Soren--see how his development goes after this 5th injection, weigh this treatment with other therapies.
Anyhow, that's where we are today. Again, I promise to write when we have a test update.
Amy
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