Soren is getting admitted to the UCLA today for testing: an EEG/telemetry (video), MRI, and PET scan. He will be in for at least 3 days, depending "on my child's performance" (i.e. amount of seizure activity).
So for the first time, I would like everyone to send out thoughts for Soren to seize in these next 3 days so that this activity can be recorded on the EEG/telemetry. I will be in the hospital, day and night, for the duration of Soren's stay because I am the camera operator, making sure any seizures are captured on film.
They are so serious about a parent staying that I'm actually only allowed to leave to shower or to get food from the cafeteria that I must then bring back up to the room to eat. Instead I'm just bringing a big cooler full of my food and Soren's food.
I probably won't be able to post an update on the progress until we get home. But I plan to take pictures so everyone can see what the whole process is like.
Thanks for the good thoughts!
Amy
1 comment:
Hi Amy.
Glad to hear the remainder of the trip went well. The photos are beautiful. Thanks for sharing.
Sorry to hear about Soren's recent seizure activity. We'll definitely keep all of you in our thoughts and prayers the next few days.
Take good care,
Heesun
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