Camille has many elements to her diagnosis. Besides Infantile Spasms, she has been diagnosed with Cerebral Palsey, Cortical Visual Impairment, she has a feeding tube that has caused her many issues and prolonged hospital stays, she has a Dysphagia, which is a swallowing disorder, Gastroesophageal Reflux Disease, and Immunodeficieny. It appears that it is Camille's Immunodeficiency that is causing her Epilepsy. Currently, Camille receives monthly infusions of IVIg (Intravenous Immunoglobulins) to treat her Immunodeficiency (Hypogammaglobulinemia) and to control her seizures. The great news is that Camille has achieved seizure control with high dose IVIg treatment.
Like Soren, Camille's Infantile Spasms have caused global developmental delay. So she also does a full spectrum of therapies to build her strength and further her development. And I must say, she is one of the most amazing kids I've met. Despite many hospital stays and over 1000 seizures at her worst, Camille continues to get stronger and more interactive. Camille gives me lots of hope with her strength and willpower.
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