Overall, we've seen a definite decrease in seizures. The VNS seems to catch Soren's small myoclonic seizures just as they are revving up, stopping them in their tracks. And we've been able to use the magnet and wave it over the device to stop some of the bigger tonic-clonic seizures.
It's the early morning seizures that he has upon waking or right after waking up that are still breaking through. They are really big and the magnet just doesn't stop them, no matter how many times we wave it over the device. It's frustrating because those are some of Soren's worst seizures and it just starts his day off terribly. But, again, we have to be patient.
The VNS goes on and off in cycles. So on 30 seconds, off 5 minutes. And we've noticed a funny side effect when it turns on during these 30 seconds. See, the Vagus nerve is near your vocal cords. And Soren's Vagus nerve now has a lead coiled around it. So when the device is cycles on and he's talking, it makes his voice vibrate. Soren happens to find this very amusing. In fact, it's led him to making funny vocalizations and cracking himself up. I wish I'd caught it on video.
So, we still have a ways to go for better control, but we are happy that we took the plunge and got Soren the VNS.