Monday, November 16, 2009

Soren Update

Almost a year ago, Soren started having Epileptic Spasms again. We have struggled through this year, playing with meds and diet to try and get control. Unfortunately, we simply haven't. While these seizures are fewer and far between than previous seizures, these are really hard on Soren's vision. And any time he has seizures, progress made is erased. I actually realized that I haven't heard Soren laugh in a long, long time. I fear that either the seizures or the meds or the combination is wiping these out.

Not hearing your child laugh is really hard. I mean, I know he's a content boy, but when he used to laugh, it really drove home that he was happy. That he found things amusing.

So we will continue on our quest to get seizure control. Soren's neurologist is retiring, so maybe fresh eyes will think of something new that will help our boy. And hopefully his infectious laugh will return.

Amy

2 comments:

Kim said...

I'm so sorry you have to deal with this. I hope you are finding the solutions you need.

I found your blog because my five-year-old son is also named Soren, and has cerebral palsy. My son is also incredibly handsome--another thing our boys have in common!

Soren Patrick Rogers said...

Hi Kim,
Thank you for your note. I'm sorry that you have to deal with this as well. But our handsome Sorens are very lucky to have us!