Sorry for my lapse again in posting. I was doing a big, time-consuming job and fell off my blogging duties.
Soren had a great, seizure-free Thanksgiving. Now that's something to be thankful for!
Since I last wrote, Soren had a neurologist appointment. Soren has remained tonic-clonic seizure-free (to the best of our knowledge) since starting the Clobazam on June 21st. So Dr. Shields suggested that we remove one of the other drugs (Zonegran or Lamictal). Aaron and I were a little nervous about this, because why mess with success. But we decided to start weaning Zonegran, taking it really slow. So instead of dropping out one pill a week, we're dropping it out every 2 weeks. If all goes well, he'll be off Zonegran in 11 weeks.
Meanwhile, Soren toughed his way through another cold. This time he lost his voice and had a nasty cough. But he's the funniest sick kid. I kept hearing him making his sad, hoarse sound as I was working. But whenever I looked at him, he was smiling and the sound was him trying to laugh.
He's doing well with his new intensive Physical Therapy, though he hates working so hard (who doesn't?). And we had an assessment for Music Therapy which was really cool. The therapist was trying to get Soren to play peek-a-boo, which Soren has absolutely no interest in. But then he heard a piano in the next room and perked up. We went over to the piano in our room and started playing, my hands over Soren's hands. He loved it! Some smiles and giggles. Very cool.
That's it. I hope to update sooner next time!